I had one when i was six and i'm doing fine now. I have childhood onset cerebral adrenoleukodystrophy. In fact I would say I'm a prettty strange case. I should be loosing brain cells , but i'm not, lucky me. I had mine done in Minnesota, and I live in Wisconson. I just want to know how it went for you or them
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Do you want to know the trueth? My grandfather is no longer living, he had something like that. Your young so..I hope you make it
I don't know if you have ever seen the movie Lorenzo's oil, but it is about a young child who had ALD. Sadly ALD is a horrible disease, and you are very fortunate that you are doing ok! There are many conditions treated with bone marrow transplants, particularly leukemias, lymphomas, and myelomas.
Well.. I work in an Oncology hospital and I get to see folks get bone marrow transplants as well as HCPT (stem cell) transplants. I've watched folks sail through it like troopers and walk out.
Some don't. I've seen where the HLA type was a great match, and the graft never took, and times where the HLA type was an OK match and the person took up the graft and made great recovery.Leukemias, Lymphomas, Myelomas are very ugly diseases.
They do not play by the rules, and play no favorites.Count yourself lucky.
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